MNDs are neurological disorders that destroy motor neurons, the cells that control skeletal muscle activity such as walking, breathing, speaking, and swallowing.
In a LinkedIn post, Monisha shared the challenges of travelling with her 14-year-old daughter, Keya, who has Spinal Muscular ...
A Mumbai woman praised IndiGo Airlines for ensuring a smooth travel experience for her wheelchair-bound daughter.
Thiruvananthapuram, A registry for rare disease patients in the state will become a reality this year, State Health Minister ...
The Centre’s affidavit in Kerala High Court, responding to a 24-year-old SMA patient’s petition, has ignored appeals to ...
Health activists demand government action to reduce the cost of SMA medicines, citing constitutional obligations and ...
Application is supported by results from the DEVOTE study, which suggested that two doses of Spinraza (nusinerse) 50 mg taken ...
The health activists argue that the government is empowered with effective law and policy tools and therefore should ...
Regulators in the U.S. and the European Union agreed to review Biogen’s applications for approval of a higher dose Spinraza ...
Centre abdicates its constitutional obligation, criticises patients and experts on SMA issue: Our Bureau, New Delhi Friday, January 24, 2025, 18:15 Hrs [IST] Patients and public h ...
BIIB's regulatory filings are supported by late-stage data, which show that treatment with a higher Spinraza dose improves motor function in infants with SMA.
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