Union Co. group raises awareness for rare diseases
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
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Detroit Lions VP raises awareness for daughter's rare disease
Like most children, Morgan enjoys games, showing off her toys, and spending some time on her tablet. But sadly, unlike most ...
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World Rare Disease Day: Edmonton area Guillain-Barré syndrome survivor shares her story
Holly Helm’s life changed forever. “It was like life changed within a blink of an eye,” she explained. “I was completely ...
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Health minister pledges rare disease strategy
An estimated 60,000 people in Cyprus suffer from rare diseases, Health Minister Michael Damianos said on Friday. He pledged that the ministry would move methodically to establish a comprehensive ...
Clinical trial provides hope for Mass. child with rare genetic disorder
On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...